Are you a FL patient, partner, caregiver, or physician? Your insights matter in shaping patient-centred care and treatment options for the FL community. Take our survey today!
We are conducting a vital survey to better understand what is important to you, follicular lymphoma (FL) patients and partners, caregivers, and physicians as you make decisions among treatment options. How do you balance treatment benefits, risks and impact on your daily life? Your participation will provide crucial insights that will help guide future treatment development and research efforts, ultimately helping improve the care and support available to those affected by FL.
FL treatment decisions are often influenced by many factors, from the method of drug administration to the frequency of visits and potential side effects. But what matters most to you?
This survey is designed to gather insights into what you consider important when selecting a treatment regimen. Your feedback will help us understand how these factors shape your decisions and priorities, empowering healthcare providers to offer more personalized, patient-centered care.
The survey presents different hypothetical treatment options and asks you to share your preferences based on several key factors, such as:
* Mode of administration (e.g., pill or IV infusion)
* Duration of treatment
* Frequency of medical visits
* Potential side effects, such as the risk of infection
Your responses will remain completely anonymous and will be analyzed to uncover trends and preferences across the FL community globally.
Please note that the survey is based on hypothetical treatments and may not represent any specific current or future treatments at this time.
The data collected will play an important role in shaping the future of FL treatment and care.
By participating, you are contributing to:
Your experiences and preferences are unique, and your voice matters.
By participating in this survey, you will:
The survey should take around 10 to 15 minutes to complete.
Every response counts and will help us build a clearer picture of what matters to the FL community when it comes to treatment decisions.
If you are living with follicular lymphoma, or if you are a partner or caregiver, or physician, we encourage you to share your thoughts and experiences by participating in this important survey.
Together, we can drive progress in FL care and research.
Thank you for taking the time to contribute to the future of follicular lymphoma care!
Thank you to the patients and partner who helped co-create this survey. We are conducting this research project in collaboration with BeiGene, which has supported and funded this work.