Treatment for FL. What's important to you? Follicular Lymphoma Patients, Partners, Caregivers & Physicians survey

Are you a FL patient, partner, caregiver, or physician? Your insights matter in shaping patient-centred care and treatment options for the FL community. Take our survey today!  

Help Shape the Future of Follicular Lymphoma Care 

We are conducting a vital survey to better understand what is important to you, follicular lymphoma (FL) patients and partners, caregivers, and physicians as you make decisions among treatment options. How do you balance treatment benefits, risks and impact on your daily life? Your participation will provide crucial insights that will help guide future treatment development and research efforts, ultimately helping improve the care and support available to those affected by FL. 

Who can take the survey? 

  • * People diagnosed with follicular lymphoma 
  • * Partners or caregivers of individuals with follicular lymphoma
  • * Physicians who treat FL patients 
  • * Participants must reside in the UK, US, Canada, Australia or Spain (Spanish version of survey available) 
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Why Are We Doing This? 

FL treatment decisions are often influenced by many factors, from the method of drug administration to the frequency of visits and potential side effects. But what matters most to you? 

This survey is designed to gather insights into what you consider important when selecting a treatment regimen. Your feedback will help us understand how these factors shape your decisions and priorities, empowering healthcare providers to offer more personalized, patient-centered care. 

What Will You Be Asked? 

The survey presents different hypothetical treatment options and asks you to share your preferences based on several key factors, such as: 

     * Mode of administration (e.g., pill or IV infusion) 

     * Duration of treatment 

     * Frequency of medical visits 

     * Potential side effects, such as the risk of infection 

Your responses will remain completely anonymous and will be analyzed to uncover trends and preferences across the FL community globally. 

Please note that the survey is based on hypothetical treatments and may not represent any specific current or future treatments at this time.   

How Will Your Responses Be Used? 

The data collected will play an important role in shaping the future of FL treatment and care.

By participating, you are contributing to: 

  •      * Patient-centered treatment decisions:
  •        Ensuring that the treatments offered are aligned with what matters most to patients and caregivers. 
  •      * Clinical research and healthcare practice:
  •        Helping researchers and healthcare providers better understand what makes a treatment more or less preferable for the FL community. 
  •      * Representing the patient voice at international conferences:
  •        We plan to present the findings at major hematology conferences next year, ensuring that the voices of patients and their caregivers are         heard by the healthcare and research community. 

Why Should You Participate? 

Your experiences and preferences are unique, and your voice matters.

By participating in this survey, you will: 

  •      * Help healthcare providers design better treatment plans that align with real patient and caregiver priorities. 
  •      * Ensure that your voice and those of others affected by FL are heard by the wider healthcare community. 
  •      * Make a tangible impact on the future of FL research and care. 

How Long Will the Survey Take? 

The survey should take around 10 to 15 minutes to complete.

Every response counts and will help us build a clearer picture of what matters to the FL community when it comes to treatment decisions. 

Participate Today! 

If you are living with follicular lymphoma, or if you are a partner or caregiver, or physician, we encourage you to share your thoughts and experiences by participating in this important survey.  

Together, we can drive progress in FL care and research.

Thank you for taking the time to contribute to the future of follicular lymphoma care! 

Thank you to the patients and partner who helped co-create this survey. We are conducting this research project in collaboration with BeiGene, which has supported and funded this work.  

Share Your Insights!

Help enhance treatments for follicular lymphoma by taking our quick, confidential survey.

Your voice matters—whether you're a patient, caregiver, or physician.