Watch our empowering webinar with a panel of inspiring individuals and expert speakers as they share uplifting personal stories, professional advice and the unique perspective of supporting a loved one with follicular lymphoma.
Together, we’ll explore how to nurture your emotional wellbeing, build strong support systems, and embrace a positive outlook on living with FL.
In this session, we will discuss:
Emotional strength and resilience: Learn from the experts about managing the mental health challenges of FL, including helpful resources and stress management techniques to help you feel more in control.
Wellbeing through nutrition: Discover how nutrition can support your physical and emotional health.
Caregiver and family perspectives: Hear from a caregiver and partner about the emotional toll of caregiving, the importance of family involvement, and strategies to maintain balance and resilience while supporting a loved one.
Support and advocacy: Uncover practical ways to advocate for emotional support alongside your medical care and build strong support networks for yourself and your caregivers.
Inspiring stories of hope: Hear uplifting personal stories from those living with FL and their caregivers, highlighting resilience and optimism.
Celebrate strength and the power of community while gaining practical insights to help your FL journey. Whether you’re navigating your own FL or supporting a loved one, this session will leave you feeling inspired, empowered, and connected.
Watch our past webinars here.
Dr Mitchell Smith – Chief Medical Officer, Follicular Lymphoma Foundation
Dr Mitchell Smith has an extensive educational background, having earned his Medical Degree and PhD from Case Western Reserve University School of Medicine in Cleveland, OH. He has also completed several residencies and fellowships, including a Fellowship in Medical Oncology at Memorial Sloan-Kettering Cancer Centre in NY. Dr Smith’s career has also spanned many years and institutions, including serving as Director of the Lymphoma Program at Fox Chase Cancer Centre and Director of the Lymphoid Malignancy Program at the Cleveland Clinic. Join him as he shares his expert insights throughout our engaging webinar series.
Carmen Hilton – Clinical Social Worker/Behavioural Health Therapist, Inova Peterson Life with Cancer Family Center, Inova Schar Cancer Institute
Carmen Hilton is a bilingual English/Spanish speaking Licensed Clinical Social Worker, and Certified Oncology Social Worker (OSW-C) with over 20 years of experience in combined clinical and diverse areas of social work. She is a Behavioural Health Therapist at Inova Schar Cancer Institute’s Life With Cancer Program. Her clinical practice focuses on helping cancer patients and caregivers navigate the emotional impact and psychosocial difficulties of a cancer diagnosis. She is trained in and uses various modalities to bring healing. Carmen’s years of experience encompass work in outpatient, hospital, and community settings. She has co-developed and implemented psychosocial programs that address the mental health of cancer patients. Carmen has presented at the Association of Oncology Social Work, the American Psychosocial Oncology Society and was a panellist at the American Society of Haematology Conference 2024.
Nicky Greenhalgh – Founder of Living with Follicular Lymphoma Facebook group and Clinical Nutritionist
Nicky Greenhalgh is a clinical nutritionist specializing in oncology nutrition and a passionate advocate for FL patients. Diagnosed with FL at age 32, Nicky transformed her personal journey into a mission to support others facing similar challenges. She founded the thriving Facebook community *Living with Follicular Lymphoma*, connecting over 12,000 members worldwide. Nicky combines her expertise in nutrition and lived experience to empower cancer patients with practical, evidence-based strategies to improve quality of life. Nicky shares insights on managing cancer through nutrition, self-care, and resilience.
Discover more about Nicky’s inspiring story here, her journey in founding the Facebook community Living with Follicular Lymphoma, her experience participating in research during our clinical trials webinar, and her interviewing expert oncologists on the future of curing FL.
Ben Johnson, Patient Advocate
Ben is 47 and was diagnosed with FL in 2017. He underwent RCHOP chemotherapy treatment in 2017/18 and further chemo-immunotherapy in 2024. Ben successfully managed the physical recovery from his treatments, but failed to recognise the mental health implications a chronic illness can cause longer-term. The mental health issues associated with anxiety, fear and depression became more frequent for Ben during the COVID-19 pandemic. Ben took the steps to seek help through specific therapeutic support and wider organisational group support. In 2023 Ben raised money for the FLF – riding from London to Paris. He now has a much healthier lifestyle and positive outlook and acknowledges that mental health plays a crucial role in living and managing his FL. Read Ben’s full story here.
Leah McAslan, Caregiver and Patient Advocate
Leah’s husband, Andrew, was diagnosed with stage 4 follicular lymphoma aged 25. He immediately received chemotherapy and immunotherapy, achieving no evidence of disease as a result of this treatment. Unfortunately, he relapsed only a year after this and has been on watch & wait for the last 2 years. His diagnosis was something they have coped with as a team. Dealing with this disease can be all consuming, not just for the patient but those who love them. Caregivers spend a lot of time feeling helpless, wishing there was more one could do and worrying about the future, whilst trying to be strong for their loved one. Understanding ways to support caregiver wellbeing whilst focusing on those being cared for, is crucial for emotional health.
Watch Andrew’s moving speech on their shared journey at the FLF’s 2024 Unlock the Cure Gala and hear more on their inspiring story of navigating relapse in the Relapsed Follicular Lymphoma Webinar.
This webinar series is supported by an educational grant from Genmab US, Inc and AbbVie and sponsorship from BeiGene USA, Inc., and Novartis. All of the above have had no influence on, control of, nor input into the development or performance of the webinar series.
