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About the Follicular Lymphoma Foundation

Testing A Blood

Our Mission

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Our History

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Board of Directors

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Our Team

About the FLF

Nobody deserves to live with an incurable cancer. The Follicular Lymphoma Foundation (FLF) is dedicated to changing that. As the first charity focused solely on finding a cure for follicular lymphoma, we’re leading the charge to accelerate research and provide hope to patients worldwide.

With established entities in Israel, the United Kingdom, and the United States, we drive international collaboration to accelerate progress in the diagnosis, treatment, and eventual cure of this cancer.

Our worldwide reach allows us to partner with leading researchers, healthcare professionals, and patient communities across diverse regions, ensuring our efforts are targeted where they are needed most. 

Through our global partnerships and a unified approach, we are breaking down barriers in research and patient support. Join us in our mission to Unlock the Cure for follicular lymphoma.

Join our mission

What is FL?

Follicular lymphoma is a type of blood cancer affecting over a million people across the world. Follicular lymphoma is the 2nd most common non-Hodgkin lymphoma, yet despite its prevalence, most people have never heard of it. This means it’s not getting the scientific attention or the funding it deserves. We’re collaborating with global leaders in the industry to change this. 

Follicular lymphoma isn’t like most other cancers. For most people, it isn’t an aggressive disease. Instead, individuals with it will go through periods of active disease, followed by remissions. 

Living with follicular lymphoma causes a range of physical and emotional challenges, as well as living with the uncertainty of not knowing when and how the cancer will return.

Around a fifth of people living with follicular lymphoma will develop an acute form of the disease which can be highly resistant to treatment and have a poor outcome for patients.

Follicular lymphoma is currently incurable, but we are committed to changing that – for patients living with it now and for those who will be diagnosed in the future. With your help, a cure is just around the corner.

Learn more about follicular lymphoma

Our Mission

To find a cure and find it fast

Follicular lymphoma is far from a new disease. But although first diagnosed almost a century ago in 1925, progress in the treatment of follicular lymphoma has been frustratingly slow. Too slow for people living with this condition. We’re not prepared to wait any longer.

Research and science have progressed rapidly – survival rates for some cancers have increased dramatically. Yet follicular lymphoma receives comparatively little funding and little attention – unless you know someone with FL you are unlikely to have heard of it. Nobody should live with an incurable cancer – when we can change that.

Follicular lymphoma

Our History

We know better than anyone what it’s like to live with follicular lymphoma. We understand the fear, the challenges, and the uncertainty an FL diagnosis and ongoing treatments bring. That’s because the Follicular Lymphoma Foundation was launched in the summer of 2019 by our founder, Nicola Mendelsohn, who was diagnosed with FL in November 2016.

At the time, despite being the second most common non-Hodgkin lymphoma, there was very little information available about follicular lymphoma. During her search to understand her condition better, Nicola connected with the ‘Living with Follicular Lymphoma’ Facebook group. Here she had the opportunity to be part of a community of others who shared her journey, and who

shared their own insight, advice and support. The group has over 12,000 members globally – a close-knit online community of people going through the same journeys.

Over time, Nicola became more involved in the stories and experiences of the individuals in the group as well as her own treatment. This led her to develop relationships with leading clinicians and investigators in the field, who convinced her that by raising awareness and funds, so much more could be done to find a cure.

Driven by her passion to make a difference to people living with follicular lymphoma and find a cure for this disease, the Follicular Lymphoma Foundation was established in the summer of 2019.

Read Nicola's story

Join our free webinar on ‘When FL Changes: Understanding Progression & Transformation’

Thursday, March 27th
09:00 EST | 13:00 GMT | 21:00 AWST

For more info and to register click here