Sexual wellbeing while coping with the physical and emotional challenges of living with follicular lymphoma can undoubtedly impact intimacy between a patient and their partner. Treatment for cancer can lower your libido, affect how you feel about yourself, and lower your sex drive. However, while it can be a challenging time for the patients and their loved ones, there are a lot of ways to maintain a fulfilling sexual life.
It’s important to first understand how treatment affects both patients and their loved ones, so we can approach these challenges with empathy and care.
Follicular lymphoma is characterized by the abnormal growth of B-cells, leading to swollen lymph nodes. People diagnosed with follicular lymphoma can often feel different symptoms like fatigue, unexpected weight loss, abdominal pain, and night sweats.
On the other hand, treatment typically involves a combination of chemotherapy, radiation therapy, immunotherapy, and, in some cases, stem cell transplantation. These treatments can cause a range of side effects, including fatigue, nausea, hair loss, and changes in body image, all of which can impact confidence and sexual health.
It’s natural to feel fear when faced with a cancer diagnosis. The experience can often make you feel disconnected from your own body, overwhelmed, and out of sync with yourself. Reconnecting with yourself takes time, patience and small, but meaningful efforts.
Here are some tips to help you regain yourself while navigating follicular lymphoma:
One of the first steps to maintaining your sexual well-being while undergoing follicular lymphoma treatment is having open and honest communication. It’s essential for patients to discuss their concerns and desires with their healthcare team, including oncologists, nurses, and counsellors, and to do so in a safe space, without judgement. If none of these people make you feel comfortable, then they will be able to refer you on to the right person.
Your healthcare team can provide guidance on managing treatment-related side effects and offer suggestions for preserving intimacy. Don’t be afraid to ask questions or seek referrals to specialists who can address specific concerns. The experts are here to help.
Follicular lymphoma treatment can lead to various physical challenges that may affect your sexual well-being. Fatigue, a common side effect, can lower energy levels, making intimacy difficult. Try scheduling moments of intimacy for times when you feel more rested.
If you are experiencing nausea and digestive issues as a side effect of your treatment, you can avoid eating heavy meals before intimacy. You can also ask your healthcare team for advice about taking anti-nausea medications. In addition, hydration is essential to alleviate some treatment-related symptoms.
Changes in your body image can affect your self-esteem, for example if you have hair loss as an outcome from treatment. While these changes are often inevitable, you can always try new hairstyles and outfits that will regain your confidence. But most importantly, you must always remember that you are beautiful, no matter what.
Follicular lymphoma treatment can take a toll on your emotional well-being, which can, in turn, impact you sexually. Stress, anxiety, and depression are some of the most common emotional challenges faced by patients.
When deemed necessary, seek support from a therapist, counsellor, or support groups to address these feelings and maintain emotional intimacy with your partner.
On the other hand, you can consider doing activities that promote emotional connection with your partner, such as sharing your thoughts and feelings, practising mindfulness together, or simply spending quality time without distractions.
Emotional intimacy is a key part of a healthy sex life, and nurturing this connection can help you and your partner navigate the challenges of treatment.
Sexual wellness is not just about intercourse. Physical intimacy can still be maintained through non-sexual activities like giving massages, verbal affirmations, and small acts of care.
These activities could provide you with comfort and reassurance during times when sexual activity may not be possible or desired due to treatment-related side effects.
Practising safe sex during follicular lymphoma treatment is essential to avoid any infections. You can consult your healthcare team about any precautions you should take regarding this matter.
If you have any concerns about future family planning, you can discuss fertility preservation options with your healthcare providers, as some treatments may affect fertility.
Dating as a follicular lymphoma patient can present unique challenges, but this does not prevent love and lasting relationships from blossoming. Open and honest communication is essential for building trust and understanding in a relationship, particularly when living with a chronic illness. Relationships are built with trust, sharing your diagnosis early on can help your partner understand more about your journey.
It’s also important to consider choosing a partner who is understanding, patient, and supportive. Dating while living with follicular lymphoma may require some adjustments, but it’s an opportunity to form meaningful relationships and share your life with someone who cares and loves you, no matter what.
At the Follicular Lymphoma Foundation, we’re dedicated to driving progress in research and treatment for follicular lymphoma patients worldwide.
There are many ways to join and support the FLF. You can donate, participate in fundraising efforts, or engage with our community, each action, no matter how small, has a meaningful impact. Together, we’re stronger, and your involvement brings hope and inspiration to those affected by follicular lymphoma.
Join our mission in finding a cure for follicular lymphoma today.
Disclaimer: The information provided in this blog post is for educational purposes only and should not be considered a substitute for professional medical advice. Always consult with your healthcare provider for personalised guidance and treatment options.
